Saturday, May 5, 2012

Grabby hands

I love that Evan has progressed enough to want to grab anything in his sight and play with it. Really I am.
I tell myself this at least 20 times a day, because otherwise I might be pulling my hair out.
It's not such a problem when you've got a baby with no tubes attached to them. You can make sure whatever is within their reach is baby safe. And barring that, you grab the not so baby safe stuff and hurl it across the room to get it out of their reach.

BUT.... In Evan's case, we've got a feeding tube and oxygen attached to him. Both of these things are wonderful play toys to him, and he just about gives me fits when he gets a death grip on his feeding tube and pulls upward, causing the g-button tube that is supposed to be inside to become exposed. Now, the g-button has a balloon keeping it placed in his stomach, but I still freak a little when he does this, since both his stomach and skin are fairly elastic, and I have images of it popping out dancing in my head.

It's not that it's a major emergency if this happens. But I still worry about it. I also worry about him getting a good grip on the trach and pulling it out just enough slip out. The trach ties make this less of a possibility, though, and I'm familiar and comfortable enough with the trach that I don't worry about that as much. Just 10 times a day, as opposed to the 20 times a day I worry about the g-button coming out.

I love being a mother, and having all these things to worry about on top of the usual motherly worries doesn't change that fact. It doesn't matter how grabby those sweet little hands get, or how fussy he is over teething. Or that he decides to throw a party in his room three nights a week from 2 AM to 3:30, and then naps in short 30 minute bursts the next day so that there is no way I can nap with him.

Nope, all that is A-okay with me, because I get to do all the cool, fun stuff with him, like seeing him discover his feet, and find out that he can make popping sounds with his lips. I get to see him smile so many times in a day, and see all that progress that we've worked so hard for.
He's amazing, and I am so lucky to be his Momma.



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