Thursday, November 28, 2013

Thankful

Every year, I am so thankful. I'm thankful for my family, immediate, extended and in-laws, and thankful I am alive and with my kids.  I am thankful I was given the opportunity to be a mother at all, that Evan was born, that just when I was getting used to being everything being his Momma entails, Kayla came along and shook things up. I am thankful she was healthy and has such a big personality. 
I am thankful to have a roof over my head, to have reliable transportation, and to have food in our bellies and clean water. 
I am thankful to have been given all  the opportunities I have.  And that I have been given the opportunity to learn from my (sometimes monumental) mistakes. 

I am thankful for all the wonderful people who have helped care for Evan through the years. From the day he was born til today, he has had so many people care for him, I have lost count. 

I am thankful for my life. It's not perfect. It's not traditionally beautiful. 
But it's my life and I love it. 


Friday, November 8, 2013

How much information is too much?

In the wake of the terrible and well-documented hoax involving Brad Paisley and his wife and a stranger who stole pictures of a real child with cancer... (Read more here: http://news.yahoo.com/blogs/nightline-fix-abc-news/elaborate-hoax-lures-brad-paisley-kimberly-williams-paisley-153350254.html?vp=1 ) 
I feel the need to question- How much information should I share about my child online, accessible to everyone?  It is a parent's responsibility to protect our children, but at the same time, some of us desperately want to share the beautiful story of their lives. We want to create awareness, to show mothers who are going through a terrible time that there is hope and beauty and joy that can come from their journey. We want to show that there are enormous obstacles, but in order to overcome our fear, it helps to take away the unknown factor. 
To help our children and to help families everywhere and to help others understand, we sometimes share photos that are heart-wrenching and show the worst moments. 
This isn't shared for sympathy, but because we know that if we share these images, it might help someone down the road, if only by taking away the fear of the unknown. 

You all have likely seen the images of children with cancer or birth defects on Facebook, with the message "Like= $1" or "Like if you have a heart, ignore if you don't".  
These images are most likely part of the public domain, released as part of a news story.  And someone totally unrelated to the child in question is simply using the image to gain likes on their page. 

Beyond that, there are the people that use these images for far more sinister purposes, such as the story above. 
Now, I actually have sympathy for the people who feel the need to use such images to garner attention and public sympathy.  They are sad individuals that really need help, and this is a way they are reaching out. 
However, it doesn't excuse the fact that they are fabricating a person using someone else's very real pain. 
Things like this hurt the cause of so many parents who are only trying to bring awareness to the world. To make the world a better place for their children. 

I've often witnessed mothers being told that they're lying to gain sympathy, that they're making too much fuss out of nothing.
We see this happen a lot. Sometimes because people are more prone to think that stuff like this doesn't happen to real people. So they say we're lying. 
It hurts. 


So here is my statement in regards to all posts and pictures on my blog: 
These images are mine. These words are mine. If you use any part of my blog without my permission, you will be subject to what laws apply. 
In addition to that, if I find ANYONE profiting either monetarily or emotionally from images of my son's pain, I will not let it go until I track you down, personally.  
Consider this statement my copyright.