Monday, May 6, 2013

Welcome home

We're so happy to welcome our sweet baby girl Kayla home!

Quick info-

Kayla was born on April 30th at 7:37 AM, via scheduled c-section at 39 weeks. She was 8 lbs 7 oz, 19.75 inches long! Such a big girl!

Hearing her cry was the absolute most beautiful sound. We're so proud of her.

And guess who started walking unassisted not 2 hours after his baby sister was born! My super kid, Evan!
He was showing off while I was recovering after the c-section.

Of course we're busy, but we're loving having two spectacular kids. My heart is full.















Wednesday, April 17, 2013

Life gets rescheduled

I'll just start this blog post off with this warning: I'm at the end of my rope and my filter is sadly missing.

Our c-section date was pushed back to 39 weeks because there wasn't a good medical reason to go at 37. Never mind the almost non stop contractions (which are nonproductive by the way), and the fact that at 36 weeks this girl's weight was estimated to already be 7 1/2 pounds!! No no no, can't be done! I get to do this for two more weeks!

Ladies and gentlemen, I cried like a baby. Between REALLY wanting to meet her and REALLY REALLY wanting this torturous pregnancy to end.... I. Broke. Down.

It just wasn't fair, I said to myself! My husband tried to console me that at least we knew she would be big and healthy.
Tears streaming down my face, nose clogged, I yell back "Then YOU DO IT!"
Rationality had checked out for the day.

I have had so many episodes of "false labor", I feel like I should have birthed this child half a dozen times.

I should be HAPPY. Evan was early, and had all his issues, and we have none of that this time around.

But I keep hoping I just go ahead and go into real labor, because I am so over this pregnancy and the false labor!

I feel like a gambler at a craps table, rolling the dice and yelling "Momma needs to have this baby!" And always losing.


And my poor little fella... Evan is just so awesome. I feel tons of guilt for being unable to do all the things he really needs me to do, like get down and play with him. Or take him to the park.
He's been a champ, though. We've gotten him to go to sleep on his own at night. He's working on drinking from an AWESOME sippy cup that actually works for him.... He's walking, but is still so cautious, and wants support.
HE LOVES BEING OUTSIDE!
He's doing good, I just wish I could work more with him.

That being said, even though I may whine and cry about being pregnant for two more weeks whilst enduring all the joys of false labor that feels like real labor.... I'm content as long as baby girl comes when she's supposed to.









Friday, March 29, 2013

Ginormous!

I am ginormous. I am 34 weeks pregnant, and doing well..... EXCEPT for too frequent contractions. I actually went in to the hospital a few days ago because I thought I was possibly in early labor. Turns out, my body just likes messing with me, and they put me on a medication to hopefully help the contractions ease up.

Luckily, we now know we have a 99% of making it to 36 weeks!
The c-section is being scheduled for sometime around 37 weeks. So little miss priss will be here around April 15th-19th!
That's only 3 weeks (or less) away!!!!

Evan is doing very well, he walked 8-9 steps on his own!!!! He just likes having support because he doesn't have the confidence to try it on his own most times, but he's walking!
He also is doing great eating big boy foods. He frequently demands to eat off Daddy's plate. :-)

We took Evan to the zoo last weekend, and had a really good time. He has been enjoying outside so much, he cries when we take him inside lately!!

I am learning to let him stay overnight with his grandparents. We're having him stay for a second time this weekend so that I can have some much needed rest. Unfortunately between Evan and the almost incessant contractions, I've been running very short of sleep for over a week. Thank goodness for grandparents!















Wednesday, March 6, 2013

Time keeps flying

I have to admit, the time keeps slipping away from me!

I am so immersed in day to day tasks with Evan that I'm constantly surprised when I stop to reflect where I stand.

Do you know that we are less than a month away from celebrating the first anniversary of Evan's homecoming after he spent his first 8 months in the hospital?
Seriously, a YEAR! He has come so far in that time, and it's definitely a milestone worth celebrating.

I am always going to remember his first year in three parts: NICU, TCU, and home. We spent roughly 4 months on each stage, and each had its own challenges and ups and downs.
He's talking, he's almost walking on his own, he's interacting..... My goodness, he is so very sweet to people! His personality just makes me swell with pride because he is so mellow and sweet, and smart!
He still has delays, but he's overcoming them one by one.
We're going through *that* phase where he thinks throwing a tantrum might get him what he wants when he's denied something. But that's NORMAL, and we like seeing even that! Besides, his overall attitude is so sweet, he'll outgrow that phase soon enough.

Another thing about time.... Pregnancy only lasts for a limited time! We are at 31 weeks, and planning on a c-section at 37 or 38. I have 6-7 weeks MAX left. Wow!
Of course, I am anticipating going into labor, much like I did with Evan. I was 35 weeks with him. And that particular mark is just 4 weeks away...... (GULP!!) Of course we hope for 37-38 weeks, but I'm preparing myself for earlier.

I admit I've had a hard time enjoying my pregnancy. It's been difficult after everything we went through with Evan to to let go and BE pregnant and happily anticipating a baby.
That's something I believe a lot of people don't realize- when you see a mother that has either had a child with a medical condition or one that lost her child, it's difficult for her to move on and really enjoy things.
Add to that the sometimes hurtful attitudes of others, and you have a recipe for a pretty bummed out pregnancy.
People don't always know they're being hurtful, but oftentimes we mothers are forced to put a happy face on everything during our first pregnancy that resulted in a child with a medical condition, and so all the "normal" things such as baby showers are less than joyous for us because of our worry. After all, if you're not sure what the outcome will be for your child, how fun is it to be showered with gifts that you have to consider taking back if the worst does occur?
And so, with a second "normal" healthy pregnancy, what do you do? You've already been "celebrated" for having a baby by friends and family. It's no big deal you're having another child, right?

Add to that, the very real effects of the trauma of everything that mother went through before. We are very aware of everything that can go wrong. We worry. We worry about premature birth, about bringing a newborn home when we have never dealt with that! We worry about how we're going to handle the emotions and the new experiences, and about all the normal things.
We worry about what might have been missed during prenatal testing. "What if my child has something they missed?" we ask ourselves. How are we going to handle another stay in the NICU if it's necessary? Will going into labor or having another c-section bring back the worst memories of what should have been a happy day?

In the end, we pretty much tend to blame ourselves for what happened with our children, if anything out of the ordinary occurs during pregnancy. The doctors can all repeatedly say it's nothing we did or wrong with us, and we 'll nod and say "of course." But we still feel guilty. As a mother, you are responsible for growing and sheltering a little person in your body- if something went wrong once that hurt your baby, you tend to blame the "environment" your baby was in. It's not really rational, but it somehow makes perfect sense.

I'm not just expressing my own fears and worries here, but those of other moms with similar experiences as well.

I think it's important to shed some light on this subject, for both people in general and other moms who have gone through having a child with medical issues.

Personally, I'm not that comfortable being "celebrated" by a group of people. I am not nostalgic for another baby shower.
I know I'm going to be a mess the day I have her, and I try not to borrow trouble. There are days that works, but until she gets here, I can't let myself relax enough to be really really happy. I love her and want her safe, but I can't anticipate things until I hear her cry and see her with my own eyes.

And that's kind of a bummer. But you know what? It's perfectly okay to feel this way after everything we've been through. Other mothers need to know this, because the only thing worse than feeling this way during a pregnancy is to feel this way and isolated and alone.












Friday, February 8, 2013

Lil' Bitty Update

As always, Evan continues to make progress. He's really thinking about taking those first few steps, it won't be long now. Honestly, his progress lately has been pretty steady in everything. Makes for a boring blog update, I admit.

So lets discuss our upcoming addition.
I've been calling her "Lil Bit" for a long time, but we have decided to name her Kayla Marie. :-)
I'm 27 weeks, hitting that 3rd trimester, and everything is looking good. We visited the maternal fetal medicine specialist yesterday and I'm doing so well, they don't want to see me again. :-) Much as I love our doctor there, I'm okay with that.

We got some great ultrasound pics of little miss- she had her foot on her forehead.
She is breech at the moment, but that's not really a concern because we're doing a repeat c-section.
We are still monitoring me for premature labor, but everything is looking so good, we're not concerned about it happening in the next few weeks... I went into labor with Evan at 35 weeks. I'll be pleased as punch if we make it to that point, although I hope we can make it to 39 weeks.















Wednesday, January 30, 2013

Omphalocele awareness

We're proud to announce that January 31st is Omphalocele Awareness Day!

Our group, the Mothers of Omphaloceles are using all our social networks to spread the word in order to spread awareness of this condition. We want to let other mothers that are being diagnosed now know that there is hope, and support for them. And also spread awareness to the general public that although a child being born with an Omphalocele has hope, it is important to support the family because the recovery isn't as easy and straight-forward as some might think.

This video is a compilation of pictures of Omphalocele children and adults. Please share!


http://m.youtube.com/#/watch?feature=share&list=FLss-1w6DO-csRBR0kuGepYQ&v=MiDHmKrtvXY&desktop_uri=%2Fwatch%3Fv%3DMiDHmKrtvXY%26feature%3Dshare%26list%3DFLss-1w6DO-csRBR0kuGepYQ

Wednesday, January 9, 2013

Our new addition is.....

Alrighty, lots of news to impart, so settle in and get ready for a bit of a read!

:-) Of course, one of the most pressing question I've heard lately is "So do you know what you're having...?" Yes, FINALLY after waiting until I am 22 weeks and going through gut-wrenching anxiety over the health of this expectant kiddo, I can say with a big grin on my face that we are looking forward to a BIG, HEALTHY baby GIRL!
No issues were found at our big anatomy scan yesterday, her growth is wonderful, and she was throwing punches. Atta girl!
I literally could not stop laughing after I got in my car and started driving home, the relief just swept over me.

Now of course, I'm allowing myself to plan things regarding this pregnancy beyond the vague notion that I am having a baby.
We're discussing names, we're making a list of items we need. You would be surprised at how many things we do need considering that Evan was born just 17 months ago.
But keep in mind that many things we DID receive for him, we exchanged for things better suited to older kids because we brought an 8-month old home, not a newborn. So things like a bassinet, a swing, etc.... We have to get those things!

I went through all of Evan's old clothing, which was a bittersweet endeavor. I love seeing all the tiny clothes he used to wear, but hated seeing SO MANY clothes he couldn't wear in that newborn to 3 month stage. I think we had 3 outfits we put him in. I admit I teared up seeing all the clothing he never wore.

The realization is hitting me today- I will (barring premature birth or unforeseen complications) be bringing a tiny little newborn bundle home with me when I get discharged. No tubes, no wires, no monitors.
The enormity of this is overwhelming.
I am going to be a mess hearing her cry when she's delivered and when I get to hold her.

So what about her big brother? Well, Evan has made strides in the past few weeks in all of his therapies. He is talking easier now, playing with more dexterity, and cruising with the best of them! We are still slow going with his feeding therapy, but he is making progress. We start formal therapy in two weeks.
He really is doing so wonderful. He has no idea what is going on with the new baby coming, and I just hope that there won't be too much of an issue.
The biggest problems we've faced the past couple of weeks are his lingering cold symptoms, and a reoccurrence of his night terrors. Luckily the night terrors are not as frequent as they were previously, but it still is not fun for anyone involved.

I'm cautioning anyone reading that isn't aware that this cold and flu has been a tough one so far and it's not finished! Please, if you have sick kids with a fever, keep them home. Give them lots of fluids, and disinfect areas in your home such as light switches, phones, door handles, etc that everyone touches. Use a hand sanitizer frequently when in public. Wash your hands.
And please, get a flu shot if you haven't already.