Progress Report

I'll admit it: I am worn out, worn down, exhausted and just plain tired. 

There are days I am just getting by.  

Mostly, though, I am just..... Crazy tired. 

I realized that I have been under a huge amount of stress since early 2011. Lo and behold, I see 2014 fast approaching and I think to myself: "It's been a long 3 years". 

I find myself composing possible blog entries in my head.  They never quite make it lately because my body and mind are wholly invested in just making it one more day. I also have been working on a personal project, one I've been thinking of for years but never quite managed to do. 

Nevertheless, I feel the need to defend that lone indulgence/pet project/search for my identity beyond "Momma".  

I feel a bit like the Lone Ranger.... and we won't discuss how often I hear that distinctive theme music in my head.  

In the last month, we've taken some steps forward. There are days I feel like I'm throwing myself into a brick wall.  

Evan is eating and drinking orally very well.  He has a follow up with his surgeon in early October, and I hope to discuss possible removal of his g-button. 

It may take a few months to get to that point, but in the scheme of things, I'd say it was well worth the wait. 

He has learned to recognize and respond to more and more words and phrases although his communicative vocabulary remains small and he seems to have trouble enunciating. 

We have put in a request to see a developmental pediatrician to have him evaluated. It should take some time for him to be seen. 

In the meatime, we still take him to therapy and work with him daily at home. 

He's working on opening doors, and has been fascinated lately with balancing things. He moves the dining room chairs and leans them on things precariously. 

Sometimes when I leave the room, I expect to come back to a "Poltergeist"-type situation. 

Alas, he doesn't have the upper body strength to achieve something like that just yet. But he would if he could. 

Yes he would.