Today we had his first feeding evaluation since before Kayla was born. A lot has changed in 5 months. Evan is eating and drinking... We'd like for him to drink more fluids orally since he only gets about 25% of his total fluid intake orally. We would also like to see more diversity in what he will eat, since he refuses all veggies and fruits. His diet is pretty limited, so we supplement with an instant breakfast drink to fill in the dietary gaps.
But all in all, he's doing really well, and has made a ton of progress.
As of now, he is cleared from physical therapy. He no longer requires it.
So now he's just receiving occupational, feeding and speech therapies.
It's been busy with a lot of things other than usual routine of therapies. Our AC went out, and we ended up having to purchase two window units (one for upstairs and one down) in order to stay cool for the 5 days we waited for it to be fixed by our landlord and the AC company they hired. Which made me want to crawl up the walls with frustration, because there was no reason for it to take that long. We all piled into our bedroom (the lone AC upstairs) at night and I got to experience the joy of Evan's head being firmly planted in my spine.
We went to the lake, and let Evan wade around. It was a lot if fun.
We had a rock thrown through Evan's bedroom window. Which was not fun.
Luckily, Evan was not in his room at the time due to the lack of AC. I say that the Fort Worth police officers that responded were very courteous and one even said "bye-bye" back to Evan as we ushered them out of our home.
I do believe I'm done with August.
Luckily, September is just around the corner.
I'd say we're ready.
Too precious!! Thank You God for protecting Evan thanks for continuing to share your family's journey with us.
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ReplyDeleteI know it's been a busy, busy summer...but just look how far Evan's come in that time! As a matter of fact...Miss Kayla has grown considerably in that time too.
I was so GLAD that Evan was in your room when the rock got thrown through the window! I know he was being protected. It's been difficult with the a.c. going out..in Texas, that's a given...but Carl took care of the issue so you guy's didn't get too uncomfortable! Yay!!
He is doing so good on his feeding (and all other therapies) that I just do a big 'ol "whoop-whoop" whenever I see these big leaps he's had in overcoming the obstacles he's had. I know that in the day-to-day operations that it was hard to see the "forest for all the trees" sometimes...and some days you felt overwhelmed...but looking back...well, this roller-coaster ride y'all have been on,.. you wouldn't wish on your worst enemy...but even though the valley's have been really l-o-w sometimes...the moutaintop view has been pretty awesome, too :-) <3 Love you all!