A Baby Storey

Adventures of an Omphalocele baby and family

Tuesday, August 7, 2012

Birthday pictures

We have pictures!

Posted by Michelle Storey at 7:57 AM

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About Me

Michelle Storey: Hi. I'm the mother of an omphalocele child. An omphalocele is an abdominal wall defect, where some of the organs develop outside the abdomen inside a sac. In our child's case, the liver and both large and small intestines. His omphalocele was ruptured at birth, requiring a silo and closure surgery sooner than we expected. After some complications over the first few months, he began to really thrive. He spent 8 long months at Cook Children's Medical center in Fort Worth, TX and finally came home April 3, 2012 with a tracheostomy, g-button feeding tube, oxygen, and other various equipment. His tracheostomy tube was removed on July 3, 2012 he no longer required oxygen, and we are now discovering what it's like to be without all the equipment. We're thankful every day for the wonderful support we've received from friends and family, and the great care from doctors, surgeons, and nurses (as well as hundreds of other staff!) at Cook Children's.

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